Bio: Jamie Tyrone
Jamie Tyrone has two copies of the ApoE4 gene, which puts her at a 91% lifetime risk of succumbing to Alzheimer’s disease. Only 2% of the population has this genetic status. A trained nurse and former marketing executive, she is now a full-time advocate for Alzheimer’s research. She is the founder of B.A.B.E.S., “Beating Alzheimer’s by Embracing Science,” an organization that harnesses the synergy of women in the fight against AD. She is a founding member of WomenAgainstAlzheimer’s (WA2) – a national coalition of women joined by their commitment to ending Alzheimer’s. Jamie is the co-chair of the Stakeholder Committee of AGREEDementia (Advisory Group On Risk Education For Dementia). In addition, she was a taskforce member with the Multi-Regional Clinical Trials Center (MRCT) of Brigham and Women’s Hospital and Harvard in developing there “Individual Return of Results” (IRR) guidance and tools. These advisory groups provide recommendations on when and how genetic and biomarker information should be obtained and disclosed in both research and clinical settings.
Her compelling story of unwittingly discovering her genetic status, and her subsequent journey, has been captured by the Washington Post, the cover of the New York Times, and the San Diego Union Tribune. She has been featured in a PBS News Hour segment, Huffington Post live webcast, highlighted in the CNN award winning documentary “Filling the Blank”, and the BBC documentary “Horizon: Curing Alzheimer’s”. Jamie is honored to be included on Maria Shriver’s “Big Wall of Empowerment”.
Jamie authored her award-winning book, Fighting for My Life: How to Thrive in the Shadow of Alzheimer’s, co-authored by Dr. Marwan Sabbagh, MD and was released in May of 2019 (HarperCollins). This led to The Freedoms Foundation of Valley Forge awarding her with the National George Washington Honor Medal for her dedication to research and science, including her inspirational and positive outlook.
Jamie is a self-proclaimed “lab rat” and is most proud of her personal contribution to research.
Bio: Jamie Tyrone
Jamie Tyrone has two copies of the ApoE4 gene, which puts her at a 91% lifetime risk of succumbing to Alzheimer’s disease. Only 2% of the population has this genetic status. A trained nurse and former marketing executive, she is now a full-time advocate for Alzheimer’s research. She is the founder of B.A.B.E.S., “Beating Alzheimer’s by Embracing Science,” an organization that harnesses the synergy of women in the fight against AD. She is a founding member of WomenAgainstAlzheimer’s (WA2) – a national coalition of women joined by their commitment to ending Alzheimer’s. Jamie is the co-chair of the Stakeholder Committee of AGREEDementia (Advisory Group On Risk Education For Dementia). In addition, she was a taskforce member with the Multi-Regional Clinical Trials Center (MRCT) of Brigham and Women’s Hospital and Harvard in developing there “Individual Return of Results” (IRR) guidance and tools. These advisory groups provide recommendations on when and how genetic and biomarker information should be obtained and disclosed in both research and clinical settings.
Her compelling story of unwittingly discovering her genetic status, and her subsequent journey, has been captured by the Washington Post, the cover of the New York Times, and the San Diego Union Tribune. She has been featured in a PBS News Hour segment, Huffington Post live webcast, highlighted in the CNN award winning documentary “Filling the Blank”, and the BBC documentary “Horizon: Curing Alzheimer’s”. Jamie is honored to be included on Maria Shriver’s “Big Wall of Empowerment”.
Jamie authored her award-winning book, Fighting for My Life: How to Thrive in the Shadow of Alzheimer’s, co-authored by Dr. Marwan Sabbagh, MD and was released in May of 2019 (HarperCollins). This led to The Freedoms Foundation of Valley Forge awarding her with the National George Washington Honor Medal for her dedication to research and science, including her inspirational and positive outlook.
Jamie is a self-proclaimed “lab rat” and is most proud of her personal contribution to research.